This video talks about a family
with a daughter who has a disability.
On an interview the mother says
it was difficult to remember her feelings but she needed them to film the
video. It is very common to try to forget bad feelings and it is hard to remember
them. It is natural that the brain deletes some details.
In this family the parents lose
the concept that they had of being parents when their daughter born. This type
of situations broke people´s mental schemes. They didn´t suppose it. Andrea has
an illness, it is called “Chromosome 5” or “Cri du chat”. Some characteristics
of this illness are: low weight, size and psychomotor and retardation because
the chromosome 5 is not complete.
Doctors tell the parents that
Andrea won´t to die soon. They are very happy until they arrive to home. Then,
they realised about the situation. As parents say “hemos perdido la hija sana
que esperábamos. Está aquí, pero no es la hija que esperábamos. Es una putada.”
It is very usual that problems arrive after a stressful situation happens. When
everything is calm, people have time to think about what have happened. In this
moment, Andrea´s parents think about the future of their daughter. They feel
alone. People realise about their disabilities when they confront the
disabilities of others. In the video these feelings are represented in a metaphoric
way: The mother is drowning in the water.
The mother needs to write on a
diary her feelings. These parents suffer alone, not in front of their children.
A lot of parents do the same as them, and because of that, many children don´t
know about the effort that their parents are doing. People realise about it
when they are adults. So I think parents should speak with their children about
their situations and feelings. Not with the children of the video because they
are so young.
It is very surprising that Andrea
has a little sister. It seems that it implies more effort but it is not the
case. Andrea and her sister play a lot and thanks to that, Andrea has improved
her language. Now she can communicate. Communication lets people to feel as a
part of the society and the language structures the knowledge and the thinking.
In my opinion, siblings are very
important in a family. They help each other; they are peers if they are more or
less the same age. In this type of families is very important that the member
with an illness receives a lot of affection but also the rest of siblings. Because
sometimes, the rest of siblings envy them and they try to call the attention of
their parents all the time.
Andrea goes to two different schools,
to the common one 2 days and to a special one 3 days a week. I think it is good
that children with disabilities receive different education than the other but
I don´t think going to different schools is the best way. I think the education
system should change. Everybody should go to the same school. But if people
with disabilities are in class with the rest of students and sometimes they go
out with a special teacher, they feel different as the rest and maybe excluded.
I want that these people feel
included in the society. So I propose a solution: Every student has his/her group
of classmates, like now. But each student has a timetable different, so every student
work with students of other classes in different subjects. Students are not
always in the same class with the same students, they change. In one of these
changes, people with disabilities, foreign students, students who have social
problems … and so on have a special subject adapted to them. So, none is excluded
because all the time students are changing the subject and the classmates.
Well, it could be a solution.
In Andrea´s school students
accept and respect him. But they integrate him? It is very difficult and in
most of schools it doesn´t happen. The role of the teacher is very important. I
feel that the nature try to integrate humans instead of their differences, but
the society not. Students with disabilities of Andrea´s mother felt
discriminated in their previous class. Andrea´s sister don´t do it maybe
because they are sisters but also because the parents have taught her not to do
it. Education is essential to build the personality.
To sum up, Andrea´s parents have
changed a lot. They have accommodated to their new situation. Now, the mother
works with teenagers with disabilities. She was unhappy because her daughter
can´t do usual things fluency. So she wants to help this kind of people.
Whatever could be a
problem or an opportunity, it depends on you.
The human is like a
surprising box.
Laura.
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